Alzheimer's Association (1997). Position Paper: Ethical Issues in Dementia Research.


American Geriatrics Society (1998). Position Statement: Informed Consent for Research on Human Subjects with Dementia. infconsentPF.shtml.

Association for the Accreditation of Human Research Protection Programs.

Birren, J.E., and Schaie, K.W. (2001), Eds. Handbook of the Psychology of Aging. San Diego: Academic Press.

Butler, R.N. (1969). Age-ism: Another form of bigotry. The Gerontologist 9, 243-246.

Capron, A.M. (2004). Ethical aspects of major increases in life span and life expectancy. In Aaron, H.J., and Schwartz, W.B., Eds., Coping with Methuselah: The Impact ofMolecular Biology on Medicine and Society, pp. 198-234. Washington, DC: Brookings Institution Press.

Cassel, C.K. (1988). Ethical issues in the conduct of research in long term care. The Gerontologist 28, 90-96.

Curry, L. (2002). Ethical and legal considerations in health services research. In Kapp, M.B. (Ed.), Ethics, Law, and Aging Review, 8. pp. 57-75. New York: Springer Publishing Company.

Daly, J.M., and Maas, M.L. (2000). Research review committees in long-term care settings. Geriatric Nursing 21, 13-15.

Dresser, R. (2001). Advance directives in dementia research: promoting autonomy and protecting subjects. IRB: Ethics and Human Research, 23, 1-6.

Fagerlin, A., and Schneider, C. (2004). Enough: The failure of the living will. Hastings Cent Rep 34(2), 30-42.

Fozard, J.L., and Gordon-Salant, S. (2001). Changes in vision and hearing with aging. In Birren, J.E., and Schaie, K.W., Eds. Handbook of the Psychology of Aging, pp. 241-266. San Diego: Academic Press.

Hibbard, J.H., Slovic, P., Peters, E., Finucane, M.L., and Tusler, M. (2001). Is the informed-choice policy approach appropriate for medicare beneficiaries? Health Aff, May/June 2001, pp. 199-203.

High, D.M., and Doole, M.M. (1995). Ethical and legal issues in conducting research involving elderly subjects. Behavioral Science and the Law 13(3), 319-335.

Hoffman, D.E., Boyle, P., and Levenson, S.A. (1995). Handbook for Nursing Home Ethics Committees. Washington, DC: American Association of Homes and Services for the Aging.

Hoffman, D., and Schwartz, J. (1998). Proxy consent to participation of the decisionally impaired in medical research—Maryland's policy initiative. Journal of Health Care Law and Policy 1, 123-153.

Joint International Research Group (1994). What do we owe the elderly? Hastings Cent Rep 24(2)Suppl, 1-11.

Jones, A. (2000). National Nursing Home Survey, 1999 Summary. National Center for Health Statistics. Vital and Health Statistics 13 (152). major/nnhsd/nnhsd.htm.

Juengst, E.T., Binstock, R.H., Mehlman, M., Post, S.G., and Whitehouse, P. (2003). Biogerontology, "anti-aging medicine,'' and the challenges of human enhancement. Hastings Cent Rep 33, 21-30.

Kapp, M.B. (1994). Proxy decision making in Alzheimer disease research: Durable powers of attorney, guardianship, and other alternatives. Alzheimer Dis Assoc Disord 8 Suppl. 4, 28-37.

Kapp, M. (1998). Decisional capacity, older human research subjects, and IRBs: Beyond forms and guidelines. Stanford Law and Policy Review 9, 359-371.

Keyserlingk, E., Glass, K., Kogan, S., and Gauthier, S. (1995) Proposed guidelines for the participation of persons with dementia as research subjects. Perspect Biol Med 38, 319-362.

Langer, E. (1966). Human experimentation: New York verdict affirms patient's rights. Science 151, 663-666.

Lidz, C.W., and Appelbaum, P.S. (2002). The therapeutic misconception: Problems and solutions. Med Care 40(9 Suppl.), 55-63.

Madden, D. (2001). Speed and timing of behavioral processes. In Birren, J.E., and Schaie, K.W., Eds., Handbook of the Psychology of Aging, pp. 288-312. San Diego: Academic Press.

Metlife Mature Market Institute (1999). The Mature Market: Guidelines for Effective Communication com/Applications/Corporate/WPS/CDA/PageGenerator/ 0%2C1674%2CP2801%2C00.html.

Midlarsky, E., and Kahana, E. (1994). Altruism in Later Life. Thousand Oaks, CA: SAGE Publications.

Mitford, J. (1972). Kind and Usual Punishment: The Prison Business. New York: Alfred A. Knopf.

Moody, H.R. (1996). Ethics in an Aging Society. Baltimore: Johns Hopkins University Press.

National Bioethics Advisory Commission. (1998). Research involving persons with mental disorders that may affect decision-making capacity. Rockville, MD.

National Center for Health Statistics (2002). National Health Interview Survey, 2002. Centers for Disease Control and Prevention.

National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). The Belmont Report. Department of Health, Education and Welfare. belmont.htm.

Nuremburg Code. (1949). Trials of War Criminals Before the Nuremberg Military Tribunals Under Control Council Law No. 10, Vol. 2, Nuremberg, October 1946-April 1949.

(Washington, DC: US Government Printing Office, 1949). pp. 181-182.

Ouslander, J.G., and Schnelle, J.F. (1993). Research in nursing homes: Practical aspects. J Am Geriatr Soc 41, 182-187.

Park, D.C. (1999). Aging and the controlled and automatic processing of medical information and medical intentions. In Park, D.C., Morrell, R.W., and Shifrenm, K. Eds. Processing of Medical Information in Aging Patients: Cognitive and Human Factors Perspectives, Mahwah, NJ: Erlbaum.

Post, S.G. (2003) Full-spectrum proxy consent for research participation when persons with Alzheimer disease lose decisional capacities: Research ethics and the common good. Alzheimer Dis Assoc Disord 17(Suppl. 1), 3-11.

President's Council on Bioethics (2003). Age-retardation: Scientific possibilities and moral challenges. Working paper. http://bioethicsprint/ retardation.html.

Ramsey, P. (1970). The Patient as Person. New Haven: Yale University Press.

Rogers, W., and Fisk, A. (2001). Understanding the role of attention in cognitive aging research. . In Birren, J.E., and Schaie, K.W., Eds., Handbook of the Psychology of Aging, pp. 267-287. San Diego: Academic Press.

Sachs, G. (1994) Advance consent for dementia research. Alzheimer Dis Assoc Disord 8(Suppl. 4), 19-27.

Stocking, C., Hougham, G., Baron, A., and Sachs, G. (2004). Ethics reporting in publications about research with Alzheimer's disease patients. J Am Geriatr Soc 52, 305-310.

Tymchuk, A., and Ouslander, J. (1990). Optimizing the informed consent process with elderly people. Educational Gerontology 16, 245-257.

U.S. Department of Health and Human Services (1998). Characteristics of Nursing Home Residents—1996. Washington, DC: Agency for Health Care Policy and Research, Pub. No. 99-0006.

Weijer, C. (2000). The ethical analysis of risk. Journal of Law, Medicine, and Ethics 28, 344-361.

World Medical Association. (1964). "Declaration of Helsinki.'' Ethical Principles for Medical Research Involving Human Subjects.

This page intentionally left blank

All About Alzheimers

All About Alzheimers

The comprehensive new ebook All About Alzheimers puts everything into perspective. Youll gain insight and awareness into the disease. Learn how to maintain the patients emotional health. Discover tactics you can use to deal with constant life changes. Find out how counselors can help, and when they should intervene. Learn safety precautions that can protect you, your family and your loved one. All About Alzheimers will truly empower you.

Get My Free Ebook

Post a comment