Additional Resources

The U.S. Department of Health and Human Services Web site ( This site provides information on the regulations pertaining to the responsible and ethical handling of data in research for funded projects through grants from the DHHS. See also the Public Health Service, Office of Research Integrity Web site (

American Medical Informatics Association's Ethical, Legal and Social Issues (ELSI) Working Group ( mbrcenter/wg/elsi/).

University of Miami Privacy and Data Protection Project (

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